Course Correction

© istockphoto.com/pgiam

It's amazing how time flies, but even more so when you're blue. It wasn't exactly a conscious decision, but I've gone more than three years without posting anything to my blog, and it's also been awhile since I've shared much anywhere else, at least when it comes to COH experiences. For several reasons, the last few years have been the most consciously challenging of my life. (It's probably true that growing up in a cat urine-soaked hoard was at least as challenging, but I did my best to not to be conscious of it at the time.)

Although I've been involved a little bit behind the scenes with some COH stuff in the last couple of years, it has been extraordinarily difficult for me to process exactly how much being a COH has impacted almost every aspect of my life. Sometimes, I've felt like one of those spy movie characters who wakes up one day and realizes that he's not at all the person he thought he was, or ever was; his whole life seems a fiction, and now he has to start from scratch and build a new life and a new identity that he can claim as truly his own. There were days I wished I had never learned more about hoarding or discovered anything about being a COH; it seemed easier to coast along on the momentum of my own ignorance.

I think the only thing I've been certain of during the last few years is that I've been wildly off course. On the bright side, I think I've been getting my bearings. In many ways, I've still been hiding from my past, even though I've been involved with the COH community in one way or another for more than ten years. After all that time, perhaps now I can start integrating the experiences of my past into the kind of future I'd like to have. Hey, when it comes to some things, I'm a slow learner, okay?

See you around,
HS

Interview with Dr. Fugen Neziroglu, Author of COH Self-Help Book

Fugen Neziroglu, Ph.D., ABBP, ABPP
(Image courtesy of Dr. Neziroglu.)

Many readers of this blog are likely to recognize Fugen Neziroglu, Ph.D. from her appearances on TLC's Hoarding: Buried Alive. Dr. Neziroglu is the co-author of the first self-help book aimed at children of hoarders, Children of Hoarders: How to Minimize Conflict, Reduce the Clutter, and Improve Your Relationship. According to the publisher, the book "explores strategies for communicating with hoarder parents and outlines practical intervention skills. In addition, the book shows readers how to let go of the personal shame and guilt associated with being the child of a hoarder."

I've read the book, and I think it's a good start for discussing ways that children of hoarders (COH) might cope with their situations. While focused primarily on COH who are seeking to maintain relationships with their parent(s) who hoard, the book acknowledges that engaging with a severe hoarder can be an extremely difficult challenge, both for professionals and COH alike. Importantly, the authors are respectful towards COH who have made the difficult decision to reduce or to eliminate contact with their parents. I hope to post a review here in the coming weeks.

Children of Hoarders, Inc. recently spoke with Dr. Neziroglu about her new book and her experiences working with hoarders and with COH. For more information about the book and to read the COH interview with Dr. Neziroglu, please visit the links below:

• Self-Help Book for Children of Hoarders
• Interview with Dr. Fugen Neziroglu (Part 1)
• Interview with Dr. Fugen Neziroglu (Part 2)

Talking Points for Children of Hoarders

Sidney Patrick (as drawn by Jim Smith)

Preface: This post has been sitting in my Drafts folder for a painfully long time. Its roots lie in a conversation I had with Sidney Patrick last October, just before her appearance on HuffPost Live to discuss "Hoarding's Harsh Reality". Although she wasn't a child of a hoarder, she was very familiar with COH experiences, and she had become an incredible advocate for the COH community.

Many COH believe that the needs and experiences of the families of hoarders are inadequately recognized by professionals (a topic for another day). Sidney wanted to convey that perspective in her HuffPost Live appearance, especially since one of the other guests was Professor Randy O. Frost, arguably the most influential academic in the field of hoarding. At Sidney's request, I tried to identify a few key points that she might raise during the segment. The points are included below.

Sid did a spectacular job on the show. Tragically, she passed away at far too young of an age just a few weeks later. She is profoundly missed.

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Talking Points for Children of Hoarders

As general awareness of hoarders and hoarding increases, the impact of hoarding on individuals beyond the hoarder is slowly becoming recognized.

For several years, children of hoarders (COH) have been comparing notes and sharing perspectives in a range of forums and formats, and a few recurring themes seem particularly important, at least in my opinion. I've tried to collect a few of these themes below. Perhaps they might serve as useful "talking points" for children of hoarders who find themselves being interviewed by media or who simply want to convey to friends and associates the seriousness of hoarding's impact on families.

Please feel free to use them, to critique them, or to add to them as you see fit. (If you have additional thoughts about these points, I'd love for you to share your feedback in the comments section at the end of the post. These points already have been improved immeasurably by the input of members of the Children of Hoarders Yahoo! Group.)

COH Talking Points

1. Many children of hoarders grow up under conditions of serious neglect, isolation, and abuse.
2. The impact of growing up in a hoarding environment can last for years—even decades—after a COH moves out of the childhood home.
3. While hoarding appears most dramatically to be about "stuff", to a child of a hoarder, it's really about relationships, family dynamics, shame, and self-worth: many children of hoarders have been conditioned—consciously or otherwise—to believe that they are less important than things.
4. As victims of serious, long term neglect or other types of abuse, many COH will require—and benefit from—equally serious support and counseling. Their needs are as important as the needs of the hoarders.
5. Children of hoarders seeking support should visit ChildrenOfHoarders.com for more information, and healthcare professionals should read Dr. Suzanne Chabaud's article in Psychiatric Times, "The Hidden Lives of Children of Hoarders".

As a final thought, children of hoarders sometimes are portrayed as being inappropriately angry, impatient, or otherwise unsupportive of family members who are undergoing treatment for hoarding. Professionals, in particular, are reminded that many children of hoarders have suffered a lifetime of neglect and abuse and are desperately in need of support. In such cases, expecting COHs to be patient and respectful participants in the treatment of hoarders may be likened to expecting victims of sexual abuse to help their abusers to get treatment, without acknowledging the damage done to the victims, much less getting treatment and support for them.

In memory of Sidney Patrick.

Sandy Hoards

I've been on a little bit of a hiatus lately, for a number of reasons, but I hope to resume reasonably regular posting very soon. In the meantime, I'd like to share a few recent news articles involving hoarding in my old home state of New Jersey, particularly in the context of last year's extremely damaging tropical storm, Sandy.

The Daily Record:

• April 7, 2013 - "Hoarding hits home: Sandy blew the lid off a New Jersey epidemic." (There is a comment thread about this article on Children of Hoarders Inc.'s Facebook page that might be worth a look.)
• April 8, 2013 - "Hoarders take toll on families: Relatives must often step in, seek assistance." (There is a comment thread about this article on Children of Hoarders Inc.'s Facebook page that might be worth a look.)

USA Today:

• April 8, 2013 - "Superstorm Sandy blew the lid off hoarding trend." (A condensed version of the April 7th Daily Record article.)

While I'll quibble with the headline characterizations of hoarding as an "epidemic" or as a "trend," the reporter, Lorraine Ash, did a pretty good job addressing the subject. Importantly, all of the articles include quotes from a few children of hoarders, including ChildrenOfHoarders.com spokesperson, Elizabeth Nelson. I particularly recommend the April 8th Daily Record article, which focuses on family impact.

February 2013 Blogroll

Some recent additions to my blogroll:

• The 2000 Things
• Hoarder's Child
• Hoarding Child

Worth a look!

Dr. Suzanne Chabaud to Speak at NAPO 2013

Many people recognize Suzanne Chabaud, Ph.D. from her appearances on the A&E Television Networks' program Hoarders. She is a pioneer in studying the impact of hoarding on families, particularly its impact on adult children of hoarders. In April 2013, she will be speaking about this topic at the National Association of Professional Organizers Annual Conference and Organizing Expo. Below, Dr. Chabaud offers a brief preview of the kinds of things she will be speaking about. You can also download an abstract of her presentation in PDF format.

Thank you, Dr. Chabaud, for hearing the voices of children of hoarders and for your leadership in research!

Another Comment on Interventions

Back in September, I wrote a couple of blog posts ("A Family Intervention?" and "Family Intervention Follow-Up") about a father who is married to a hoarder and was looking for advice about whether/how to have an intervention.

Earlier today, I received a comment on the original post from a family law attorney, and I think the comment is worth highlighting. Since it is written from the perspective of an attorney advocating on behalf of a family (as contrasted with advocacy for an individual hoarder), I expect that some members of the hoarding/therapy communities will disagree strongly with some of the advice. I'm comfortable with that. The vast majority of discussions about hoarders seem to focus on the hoarders themselves, while largely ignoring the impact of hoarding on the rest of the family.

Since I am not a lawyer, I won't comment on the legal issues raised by the attorney, but I will comment briefly on the moral/practical issues. In cases where children are involved, the hoarding is severe, and the family wants to give intervention a try before moving out, it can be important to have clear, well-communicated and documented objectives for improving the conditions under which the children are living. It is essential to make progress towards achieving those improved conditions with a minimum of delay. When dealing with a hoarding situation, it is very common for time to slip away, for weeks to stretch into months and years, and for a childhood to be lost. A parent's first obligation is to the children, and my commenter has laid out the steps for a fast, firm intervention as a last resort before breaking up a marriage or someone moving out of the family home.

It may be a painful approach for everyone, especially the hoarder, but doing nothing or using the "go slow" approach that seems to be favored by many hoarders' therapists can be even more painful and damaging to the rest of the family, especially to the children.

Please feel free to add your comments to the original post or to this post. For your convenience, I've quoted the attorney's full comment below.

Anonymous said...

I am a family law attorney. My advise [sic] is to:

1. Talk to the children and find out how the hoard has affected them. Be proactive and don't wait for them to come to you because they may think you have given up.
2. Schedule family counseling with a therapist.
3. Write a letter to your wife about the hoard. Be very descriptive of your past efforts to clean-up as well as the negative effects on the children. Inform her about the date for family counseling. Tell her the consequences (separation) if she does not participate in counseling AND the clean-up. Give her a timeline and all the help she will need to clean up. Set a clean-up day after you have given her time to clean it up herself (which will never happen). Send the letter to her by email, registered mail (return receipt) and by process server to assure she could say you never say she didn't receive the letter.
4. On the scheduled a clean-up day have close family and friends there to help. Pull EVERYTHING outside. Divide everything into piles to: recycle, trash, donate or keep. If she wants to donate something you know is trash, tell her you will donate it then take it to the dump. Choose your battles.
5. Record the hoard before her clean-up, after her clean-up, before your scheduled clean-up day and after.
6. Stick to it, through the anger, tears, threats, etc. Hold your ground. Clean it up. Keep it clean.
7. Set rules for the house. If the rules states no clutter in the living room, don't go to bed with clutter there. Take a picture of it then move it.
8. If all fails get a good lawyer and you should get full custody. You can put terms in the custody agreement that the children will not visit the mom over her house unless it is clean. The term "clean" will have to be defined in the agreement.

January 13, 2013 9:58:00 AM EST

I'd like to thank the anonymous attorney for making a very thought-provoking comment! I also suggest that anyone who is considering an intervention strategy should consult with both a therapist and an attorney, as everyone's situation can be different, and laws can vary widely from one community to another.